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ApertSyndrome news

Mother who once hid her baby from the world signs him up to be a model


Metro - Jul 31, 2018
She and her partner, Daniel, were told their son had a rare condition called Apert Syndrome, and Hannah, 36, was terrified of what people might say when they saw him. Now she could not be more proud of her child. Last year surgeons worked on Teddy's ...
 

Luke Davis' family shares their 'wonderful' son and a message about differences


Sharonherald - Jul 14, 2018
Luke happens to have Apert syndrome, a genetic disorder that causes abnormal development of the skull. He has undergone 16 surgeries, one of which removed his forehead and moved it forward to give his brain more room to grow. Future surgeries will ...
 

Miracle Treat Day Helps Local Miracle Family


FOX 21 Online - Aug 3, 2018
Their son, Michael, was born with Apert syndrome, an extremely rare condition that deals with bone structure. Michael has been going to Gillette Children's Specialty Healthcare since he was two months old, and had his first surgery there at just five ...
 

Apert Syndrome - premium items on eBay

NEW My Life Story with Apert Syndrome in my own Words by Ms. Christine Clinton


 

My Life Story with Apert Syndrome in my own Words by Christine Clinton (2011,...


 

My Life Story With Apert Syndrome in My Own Words, Paperback by Clinton, Chri...


 

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Apert Syndrome videos

Living with Apert Syndrome - Aiden Skees' Story


Aiden Skees is a Kentucky boy who was diagnosed with Apert syndrome at birth. Apert syndrome is a genetic birth disorder that causes the bones in his skull, ...
 

Michael's Apert Syndrome Story


Shortly after Michael's birth, doctors diagnosed him with Apert syndrome, an extremely rare condition that affects about 15 of every 1 million U.S. babies.
 

Love for Lola (Apert Syndrome)


Lola is diagnosed with Apert syndrome and other children call her weird. She simply wants some friends. Follow SBSK's other socials.
 

Tinley's David (Apert Syndrome)


Tinley is diagnosed with Apert syndrome and is sometimes teased by other children despite her sweet and bubbly personality. Tinley's brother, who she refers to ...
 

Apert Syndrome