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ApertSyndrome news

9-year-old Prospect boy shares difficult journey with Apert Synd

WDRB - Jun 5, 2017
Aiden Skees was born with Apert Syndrome, a genetic defect affecting about 50 children born in the U.S. each year. The bones in the skull, face and hands are fused together, preventing normal growth and affecting the shape of the head and face.

Vidalia family helps raise awareness of rare condition

The Franklin Sun - Jun 1, 2017
ELLIS MALONE, daughter of Matt and Heather Malone of Vidalia, asks Gov. John Bel Edwards, left, where the ice cream is during a visit to the Governor's Mansion with her parents to discuss Apert Syndrome. Pictured on the right is Jody Hammett, ...

Parents of Indonesian girl born with Apert syndrome seek medical help in Singapore

The Straits Times - May 31, 2017
SINGAPORE - The parents of a 10-month-old Indonesian girl born with Apert syndrome is seeking medical help in Singapore. Little Rizky Ramadhani, who was born in a hospital in Melaka, suffers from the rare genetic disorder that causes the premature ...

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Apert Syndrome videos

Michael's Apert Syndrome Story

Shortly after Michael's birth, doctors diagnosed him with Apert syndrome, an extremely rare condition that affects about 15 of every 1 million U.S. babies.

Apert Syndrome

Katie is diagnosed with Apert syndrome and wants you to know that she doesn't bite.

Apert Syndrome


5-1-2012 Living with Apert Syndrome

VIDOR - by Lindsey Kovacevich - It's called Apert Syndrome. The birth defect is so rare that out of every one million babies born every year no more than about ...

Apert Syndrome

Professor David Dunaway, Plastic & Reconstructive Surgeon at LCU discusses Apert Syndrome.