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ApertSyndrome news

Boy with birth defect travels to South Florida for major surgery

7News - WSVN-TV - Jul 13, 2017
“He was born with Apert Syndrome, which is very rare,” said Mesut's mother, Shazia Baksh-Hosein. “It was the first time I had heard of it, when he was born.” Apert Syndrome prevents the skull from growing normally. It can also lead to webbed fingers ...

Irishman to embark on epic 200-mile charity trek to Liverpool for brave Everton fan Daire

Irish Post - Jul 4, 2017
(Pictures: Ciaran Rogan). A BELFAST MAN is preparing to take on a gruelling charity challenge to raise money for brave Irish Everton fan Daire Flanagan. Daire, 7, was born with Apert Syndrome – a rare condition that has caused his head to double in size.

Drummer graduates with honors from special ed school

Taipei Times - Jun 25, 2017
Born with Apert syndrome — a disorder characterized by malformation of the skull, face, hands and feet — Wang Kuan-chun (王冠峻) was deemed to have multiple handicaps and was enrolled in the school for disabled people. His homeroom teacher, Hsiao ...

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Apert Syndrome videos

Michael's Apert Syndrome Story

Shortly after Michael's birth, doctors diagnosed him with Apert syndrome, an extremely rare condition that affects about 15 of every 1 million U.S. babies.

Apert Syndrome

Katie is diagnosed with Apert syndrome and wants you to know that she doesn't bite.

Apert Syndrome


5-1-2012 Living with Apert Syndrome

VIDOR - by Lindsey Kovacevich - It's called Apert Syndrome. The birth defect is so rare that out of every one million babies born every year no more than about ...

Apert Syndrome

Clinical video on Apert Syndrome reviews syndrome and case.