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ApertSyndrome news

Benefit motorcycle ride and concert held for a Brandon boy

WJTV - Oct 29, 2017
Kaiden, now 6-years-old was born with a rare genetic disorder called Apert syndrome, “it's a cranial facial syndrome that affects the skull, hands, and feet and he has to have a lot of surgeries and it's rare only 1 of 200,000 babies are born with it ...

Target Woos Us Again — This Time with an Adaptive Clothing Line for Kids with Disabilities

Babble (blog) - Oct 18, 2017
Three years later, she faced the same issue again when her youngest son with Apert syndrome also required a gastric tube to help supplement his nutrition. So when Target made a major announcement this week, parents like Bruns cheered. Starting October ...

UPDATE | 9-year-old with Apert syndrome transformed after halo device removed

WDRB - Jul 31, 2017
LOUISVILLE, Ky. (WDRB) -- He's only 9 years old, but a Prospect boy with a rare disease has already endured more than most of us do in a lifetime. Aiden Skees was born with Apert Syndrome, a genetic defect affecting only about 50 children in the U.S ...

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Apert Syndrome Awareness! - Awareness Gildan Hoodie Sweatshirt


Apert Syndrome Awareness! - Awareness Gildan Hoodie Sweatshirt


Apert Syndrome Awareness! - Awareness Gildan Hoodie Sweatshirt


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Michael's Apert Syndrome Story

Shortly after Michael's birth, doctors diagnosed him with Apert syndrome, an extremely rare condition that affects about 15 of every 1 million U.S. babies.

Apert Syndrome

Katie is diagnosed with Apert syndrome and wants you to know that she doesn't bite.

Living with Apert Syndrome - Aiden Skees' Story

Aiden Skees is a Kentucky boy who was diagnosed with Apert syndrome at birth. Apert syndrome is a genetic birth disorder that causes the bones in his skull, ...

Apert Syndrome


Apert Syndrome

Professor David Dunaway, Plastic & Reconstructive Surgeon at LCU discusses Apert Syndrome.