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5-1-2012 Living with Apert Syndrome


5-1-2012 Living with Apert Syndrome


VIDOR - by Lindsey Kovacevich - It's called Apert Syndrome. The birth defect is so rare that out of every one million babies born every year no more than about 10 or 15 will get it.A woman...
 


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Shortly after Michael's birth, doctors diagnosed him with Apert syndrome, an extremely rare condition that affects about 15 of every 1 million U.S. babies. Learn more about Apert Syndrome:...
 

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Aiden Skees is a Kentucky boy who was diagnosed with Apert syndrome at birth. Apert syndrome is a genetic birth disorder that causes the bones in his skull, face, hands and feet to be fused...
 

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Apert Syndrome baby Joey


This is Joey learning how to sit after 20 long months. Joey was born with Apert Syndrome and has a trach. We are still praying to God that Joey will be able to get his fingers separated soon.
 

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Russian toddler travels to Michigan seeking care for Apert syndrome


A nonprofit organization connected Denis' family with Beaumont Children's Hospital craniofacial plastic surgeon Kongkrit Chaiyasate, M.D. Then, Denis and his mother flew to Michigan for a...
 

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Professor David Dunaway, Plastic & Reconstructive Surgeon at LCU discusses Apert Syndrome.
 

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Woman With Rare Deformation Condition Wants Baby Despite 50% Chance Of Passing It On To Her Child


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The basics of Apert's Syndrome.
 

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A local family is looking to raise money for a girl whose fingers are fused together.
 

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Jess My New Face - Documentary


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RareConnect.org Apert syndrome community webinar 1


Join the international Apert syndrome community: https://www.rareconnect.org/en/community/apert-syndrome Living With Apert Syndrome, Webinar Series Topic: Neuropsychology: Tools We Can Use...
 

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Billy and Denise Mitchell. Apert Syndrome.


Billy has a rare condition called Apert Syndrome. A genetic disorder characterised by the premature fusion of certain skull bones. Despite over 50 operations Billy is a happy and adorable 9...
 

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Apert syndrome (also known as Alpert's syndrome or Alperts syndrome) is a specific type of acrocephalosyndactyly that is a congenital disorder characterized by malformations of the skull, face,...
 

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Apert syndrome genetics home reference. Children with apert's have a guide to understanding apert syndrome this parent's is designed answer questions that are frequently asked by parents of...
 

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Alaska offers hope for a son stricken with Apert syndrome


For the mother of a boy born with Apert syndrome, going home to Alaska has given her son a chance at a normal life. Read the full story at latimes.com: http://lat.ms/1csPU0G.
 

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Created using PowToon -- Free sign up at http://www.powtoon.com/join -- Create animated videos and animated presentations for free. PowToon is a free tool that allows you to develop cool...
 

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This video was made for a science project.
 

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Apert Syndrome Joey talking


Joey is learning to talk with his passé mere valve over his trach. He is the sweetest little boy. I love him. Mommy.
 

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Apert syndrome Joey with bottle


This is Joey drinking his bottle and falling asleep. Joey has a trach and g-tube but loves his ba ba. He was born in January 2012 in Arizona.
 

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Symptoms, risk factors and treatments of Apert syndrome (Medical Condition) Apert syndrome is a form of acrocephalosyndactyly, a congenital disorder characterized by malformations of the...
 




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