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Apert Syndrome


Apert Syndrome


Katie is diagnosed with Apert syndrome and wants you to know that she doesn't bite.
 


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Michael's Apert Syndrome Story


Shortly after Michael's birth, doctors diagnosed him with Apert syndrome, an extremely rare condition that affects about 15 of every 1 million U.S. babies. Learn more about Apert Syndrome:...
 

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Living with Apert Syndrome - Aiden Skees' Story


Aiden Skees is a Kentucky boy who was diagnosed with Apert syndrome at birth. Apert syndrome is a genetic birth disorder that causes the bones in his skull, face, hands and feet to be fused...
 

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Apert Syndrome


 

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5-1-2012 Living with Apert Syndrome


VIDOR - by Lindsey Kovacevich - It's called Apert Syndrome. The birth defect is so rare that out of every one million babies born every year no more than about 10 or 15 will get it.A woman...
 

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Tinley's David


Tinley is diagnosed with Apert syndrome and is sometimes teased by other children despite her sweet and bubbly personality. Tinley's brother, who she refers to as \
 

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Apert Syndrome


Clinical video on Apert Syndrome reviews syndrome and case.
 

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Apert Syndrome baby Joey


This is Joey learning how to sit after 20 long months. Joey was born with Apert Syndrome and has a trach. We are still praying to God that Joey will be able to get his fingers separated soon.
 

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Russian toddler travels to Michigan seeking care for Apert syndrome


A nonprofit organization connected Denis' family with Beaumont Children's Hospital craniofacial plastic surgeon Kongkrit Chaiyasate, M.D. Then, Denis and his mother flew to Michigan for a...
 

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Apert Syndrome


Professor David Dunaway, Plastic & Reconstructive Surgeon at LCU discusses Apert Syndrome.
 

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Woman With Rare Deformation Condition Wants Baby Despite 50% Chance Of Passing It On To Her Child


A woman born with Apert syndrome who has been warned not to have children , insists she'd be an amazing mum even if she passed it on to her baby Born with Apert syndrome – a condition that...
 

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All about Apert's Syndrome


The basics of Apert's Syndrome.
 

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Fundraiser for girl with Apert Syndrome


A local family is looking to raise money for a girl whose fingers are fused together.
 

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994 Apert's Syndrome


 

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Jess My New Face - Documentary


Documentary about an inspiring 17 year old girl with Apert Syndrome.
 

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What is Apert's syndrome?


 

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RareConnect.org Apert syndrome community webinar 1


Join the international Apert syndrome community: https://www.rareconnect.org/en/community/apert-syndrome Living With Apert Syndrome, Webinar Series Topic: Neuropsychology: Tools We Can Use...
 

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Billy and Denise Mitchell. Apert Syndrome.


Billy has a rare condition called Apert Syndrome. A genetic disorder characterised by the premature fusion of certain skull bones. Despite over 50 operations Billy is a happy and adorable 9...
 

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Living with Apert Syndrome


Apert syndrome (also known as Alpert's syndrome or Alperts syndrome) is a specific type of acrocephalosyndactyly that is a congenital disorder characterized by malformations of the skull, face,...
 

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What Is Apert Syndrome?


Apert syndrome genetics home reference. Children with apert's have a guide to understanding apert syndrome this parent's is designed answer questions that are frequently asked by parents of...
 

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Alaska offers hope for a son stricken with Apert syndrome


For the mother of a boy born with Apert syndrome, going home to Alaska has given her son a chance at a normal life. Read the full story at latimes.com: http://lat.ms/1csPU0G.
 

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Apert syndrome


Created using PowToon -- Free sign up at http://www.powtoon.com/join -- Create animated videos and animated presentations for free. PowToon is a free tool that allows you to develop cool...
 

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Russian toddler travels to Michigan seeking care for Apert syndrome


 

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Student With Aperts Syndrome Returns to School


 

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Apert Syndrome


This video was made for a science project.
 

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Apert-syndrome


 

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Apert Syndrome Joey talking


Joey is learning to talk with his passé mere valve over his trach. He is the sweetest little boy. I love him. Mommy.
 

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APERT SYNDROME


Andrei Villena Renee Uy 12-Humilitas.
 

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Apert syndrome Joey with bottle


This is Joey drinking his bottle and falling asleep. Joey has a trach and g-tube but loves his ba ba. He was born in January 2012 in Arizona.
 

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Happy Aisyah (APERT SYNDROME)


Meski dia telah mengalami banyak hal yang menyakitkan, namun dia tetap ceria.
 

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APERT SYNDROME


 

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Apert syndrome (Medical Condition)


Symptoms, risk factors and treatments of Apert syndrome (Medical Condition) Apert syndrome is a form of acrocephalosyndactyly, a congenital disorder characterized by malformations of the...
 




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